European Organisation for Rare Diseases - Alliance of patient associations dedicated to improving the quality of life of all people living with rare diseases in Europe. Cherubs - A non-profit support group for the families and medical care providers of children and adults born with Congenital Diaphragmatic Hernia. National Organization for Rare Disorders, Inc. - Information about NORD, its programs, special events and the variety of services offered. Includes a rare disease, organization and orphan drug database. Diseases are listed alphabetically for easy searching. Human Growth Foundation - Information about growth-related disorders through education, research, and advocacy. Member driven organization. Contact-a-Family - UK charity to support families of disabled children, whatever their condition or disability - from London. Kindler Syndrome - An article and case study of this rare disease. Includes links. Office of Rare Diseases - Information on more than 6000 rare diseases, including current research, publications from scientific and medical journals, completed research, ongoing studies, and patient support groups.