DebRA of America - Offers information, news, newsletters, support, and resources. EB Info World - Information, mailing list, pictures, and help for new parents. DebRA UK - Features organization background, information about the disorder, fundraising and research details, and news. EB Medical Research Foundation - A volunteer, nonprofit foundation dedicated to the support of medical research about this disorder. Includes information about research, videos, and organization information. DebRA Canada - Includes articles, news, and information about this genetic disorder. DebRA International - Dystrophic Epidermolysis Bullosa Research Association. A voluntary, non-profit organization dedicated to creating awareness and providing support for families affected by Epidermolysis Bullosa (EB). Includes treatment and care information, latest research, organization history, and forums. Yahoo! Groups: EBworld - Mailing list support group for parents, patients, and those interested in learning about disease. Cristina's Castle in the Clouds - Information and support for those interested in a skin disorder called epidermolysis bullosa. Message board and also a list of camps for children with this disorder. ‘Butterfly’ Churchill brothers die of infections - The BBC reports on the death of two brothers with ‘butterfly skin’. The girl whose skin never heals - The BBC reports on Sohana Collins, who has never known a day without pain. She has a rare genetic disorder that means her skin, internal and external, blisters and tears at the slightest friction.