Joe Johnson and the Call Again Soon BBS - Directed at making life better for people affected by Leukodystrophy and those who know and love them. United Leukodystrophy Foundation - Nonprofit, voluntary health organization dedicated to providing patients and their families with information about their disease and assistance in their health. Aicardi-Goutieres Syndrome - News, descriptions, contacts, and other information concerning this leukodystrophy. Undiagnosed Leukodystrophy - Lauren's homepage, a six year old from Melbourne, Australia with an as yet undiagnosed neurological condition thought to be genetic. Dylan Samuel Freeman - Dylan has a very rare neurological disorder, Alexanders disease (Leukodystrophy). His story, his progress, and photographs. Alexander Disease - Information sheet compiled by NINDS, the National Institute of Neurological Disorders and Stroke. Leukodystrophy - A short information sheet compiled by NINDS, the National Institute of Neurological Disorders and Stroke.