National Marfan Foundation - Providing accurate and timely information about the disorder to patients, family members and physicians. Canadian Marfan Association - Information, articles, events, a patient survey, and products. Also includes an article on Pharaoh Akhenaten who was believe to have the disease. International Federation of Marfan Syndrome Organizations - A global information center providing links to Organizations around the world. The Mystery of Akhenaten: Genetics or Aesthetics? - A history of the pharaoh along with theories applied to what he may have had, including Marfan's. The Marfan Syndrome - A diary of the disease events in the life of someone with this condition. Includes a list of links. Marfan Syndrome: Does Diet Play a Role - Explores the idea that the disease is affected not by the fibrillin gene, but by one's diet. Living With Marfans - This site is an in depth look into the life of someone who has Marfan Syndrome and what they have learned along the way. Marfan Syndrome - A guide to this connective tissue disease. South African Marfan Syndrome Organisation - Information in English and Afrikaans,including an interactive diagnosis tool that allows for an accurate diagnosis. Marfans Research Foundation - Irish charity with information on fund raising activities and the condition. Questions and Answers about Marfan Syndrome - From the National Institutes of Health. Slovak Marfan Association - The association provides a network of patients, relatives and doctors in Slovakia, informs and helps patients to improve the medical care. NHS Choices: Marfan Syndrome - Provides information on this inherited condition that affects the body's connective tissues. Includes details of symptoms, causes, diagnosis and treatment. Marfan Syndrome - Article from eMedicine. The engineer who fixed his own heart and others too - The BBC reports on Tal Golesworthy, who didn’t like the available treatments for Marfan, so did better. GeneReviews: Marfan Syndrome - Summary, diagnosis, clinical description, differential diagnosis, management, genetic counseling and molecular genetics. MFS Type 1 Fibrillin Gene - Major resources listed as well as genetic information. Marfan Syndrome - A Question-Answer format page of information.